1997 Partnerships for Networked Consumer Health Information Conference

Session Summary: Post-Conference Panel

Legislative and Policy Issues in Consumer Health Informatics

Thursday, April 17
1:00-4:00 PM

U.S. Department of Health and Human Services (HHS)
200 Independence Avenue, S.W.
Washington D.C.

The U.S. Department of Health and Human Services (HHS) offered a special panel to highlight key issues related to online consumer health information. The panel was sponsored by the Annenberg School for Communication, at the University of Pennsylvania.

The panel was moderated by Kathleen Hall Jamieson, Ph.D., Dean, Annenberg School for Communication, and Director, Annenberg Public Policy Center, University of Pennsylvania. Policy experts, health professionals, and representatives of industry discussed key issues being addressed by Congress and the Administration, including the privacy of personal health information in a networked environment, the regulation of personal health decision-support applications, communication as a Quality of Care issue, and the role of the Federal government in the growing consumer health information marketplace.

DRAFT AGENDA

Privacy and Patient Access to Records in a Networked Environment
Paul D. Clayton, Ph.D., President-elect, American Medical Informatics Association
Robert M. Gellman, J.D., Chair, Subcommittee on Privacy and Confidentiality, National Committee on Vital and Health Statistics
Chip Yost, Legislative Director for Health, Office of Senator Robert Bennett

Communication as an Issue in Health Care Quality
Robert Harmon, M.D., M.P.H., National Medical Director for Preventive Services, United HealthCare Corporation
Margaret Gerteis, Ph.D., Director of Education and Communications, The Picker Institute

Consumer/Patient Decision-Support Programs: Should They be Regulated?
Shannah Koss, Government Health Care Solutions Executive, IBM Corporation

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